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Key learnings from implementing a singing for breathing program as part of the SINFONIA clinical trial

Tracks
Stream 2
Saturday, September 7, 2024
11:30 AM - 11:50 AM
Room 2

Speaker

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Ms Stefanie Zappino
Music Therapist
Alfred Health / Monash University

Key learnings from implementing a singing for breathing program as part of the SINFONIA clinical trial

Abstract Overview

Chronic obstructive pulmonary disease (COPD) is the third leading cause of death world-wide and affects over 450,000 people over the age of 45 within Australia. Interstitial lung disease (ILD) is an umbrella term used to describe a group of lung conditions that affect the lung interstitium and lead to fibrosis. Despite differing aetiologies, both COPD and ILD share common symptoms of breathlessness, cough, and fatigue, resulting in overall decreased health related quality of life (QoL) for people living with these conditions. Singing for breathing (SFB) programs to support patients to live well with chronic respiratory illnesses and better self-manage chronic breathlessness are a well-established concept across the United Kingdom (UK), Ireland, and New Zealand. Several SFB programs have focused on people with COPD, however, no studies have specifically focused on people with ILD. Similarly, no such SFB programs have been implemented in Australia. SINFONIA is a randomised controlled trial (RCT), currently in progress, that aims to determine if a music therapist-led, online singing program can improve QoL and symptom management for people living with COPD or ILD who are experiencing significant breathlessness in Australia. This presentation will describe nine core learnings from establishing and conducting the SINFONIA online SFB program over the first twelve months of the study. The nine key learnings were identified and explored under the following headings: Laying the Foundations: SINFONIA Program Establishment, Developing Program Structure, Utilising Telehealth, Expecting the Unexpected: Unanticipated Medical Events, Evolving Program Resources & Promoting Feedback, Managing Group Dynamics, Diversity & Inclusion, Education & Training and, Supporting Long-Term Self-Management. Each of these learnings contributed to a unique aspect of the program, which has helped deepen our understanding of what is required to successfully implement a music therapist guided online singing for breathing program in Australia.

Biography

Stefanie is a registered Music Therapist who graduated her masters of music therapy from the University of Melbourne in 2016. Stefanie has worked within the healthcare sector for the past 8 years across acute psychiatry, oncology, palliative care and paediatrics. Stefanie is currently in a clinical research role in A/Prof Smallwood’s research team, responsible for developing and leading online singing for breathing sessions as part of the SINFONIA RCT. Stefanie has a passion for singing for breathing programs for people experiencing breathlessness due to chronic lung disease and has recently enrolled in her PhD to further explore this passion.
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